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National Association of State Head Injury Administrators
Contact Information
State:
Name:
Agency: Oregon Department of Education
Telephone: (503) 378-3600 ext 2329
Fax: (503) 378-5156
Email: steve.johnson@state.or.us
Name:
Agency: Teaching Research -
Telephone: (541) 346-0573
Fax: (541_346-0599
Email: martham@oregon.uoregon.edu
Name: Ann Glang
Agency: Teaching Research -
Telephone: (541) 346-0594
Fax: (541) 346-0599
Email: anng@oregon.uoregon.edu
Lead Agency
1. What is
the lead agency for TBI in your state? Oregon Department of Education
2. Is
the agency mandated in statute? No
3. Is
the agency mandated by executive order?
No
4. Where is the
lead agency located in state government (indicate Department, Division,
Program)?
Department of
Education -- Office of Special Education
Research
Assistant Notes:
Definitions
5. How
is TBI defined in your state? It is the policy of the state that any
person experiencing an injury defined as an injury to the brain caused by
extrinsic forces where the injury results in the loss of cognitive,
psychological, social, behavioral or physiological function for a sufficient
time to affect that person's ability to perform activities of daily living
shall be considered a person with disabilities.
6. For
what purposes is the definition used? Clarifying that persons with TBI
are persons with disabilities for determinining
7. Is this
definition in statute? Yes
8. If
so, what is the citation? ORS 410.715
9. Do
other TBI-related definitions exist in your state? (eg. special education)?
Yes
10. If so,
what are the definitions and what are they used for? "Traumatic
brain injury" means an acquired injury to the brain caused by an external
physical force resulting in total or partial functional disability or
psychosocial impairment, or both, that adversely affects a child's educational
performance. The term includes open or closed head injuries resulting in
impairments in one or more areas, including cognition; language; memory;
attention; reasoning; abstract thinking; judgment; problem-solving; sensory,
perceptual and motor abilities; psychosocial behavior; physical functions;
information processing; and speech. The term does not include brain injuries
that are congenital or degenerative, or brain injuries induced by birth
trauma. (OAR 581-15-005)
NOTE:
"Children with disabilities" means those school age children who are
entitled to a free appropriate public education as specified by ORS 339.115 and
who require special education because they have been evaluated as having one of
the following conditions as defined by rules established by the State Board of
Education: Mental retardation, hearing impairment including difficulty in
hearing and deafness, speech or language impairment, visual impairment,
including blindness, deaf-blindness, emotional disturbance, orthopedic or other
health impairment, autism, traumatic brain injury or specific learning
disabilities." (ORS 343.035(1))
Used to determine eligibility for special education services in public
schools.
Oregon State
Health Service epidemiologists use the CDC definitions based on ICD-9-CM codes
for hospitalizations and ICD-10 codes for fatalities. The codes used to
define TBI hospitalizations are N Codes 800.0-801.9, 803.0-804.9, 850.0-854.1,
959.01. The codes used to define fatal TBI are S01.0-01.9, S02.0-02.1,S02.3, S02.7-02.9, S06.0-S06.9, S07.0, S07.1, S07.8, S07.9,
S09.7-S09.9, T01.0, T02.0, T04.0, T06.0, T90.1, T90.2, T90.4, T90.5, T90.8,
T90.9.
The definition
is used to determine TBI cases in
11. How is developmental disabilities
defined in your state? The following is from an arc web page. Should be
replaced with statutory
reference:
Development Disability means a disability attributable to mental
retardation, autism, cerebral palsy, epilepsy, or other neurological
handicapping condition that requires training or support similar to that
required by individuals with mental retardation, and the disability:
Originates
before the individual attains the age of 22 years, except that in the case of
mental retardation the condition must be manifested before the age of 18; and
Has continued,
or can be expected to continue, indefinitely; and
Constitutes a
substantial handicap to the ability of the person to function
in society; or
Results in significant subaverage general
intellectual functioning with concurrent deficits in adaptive behavior that are
manifested during the developmental period. Individuals
of borderline intelligence may be considered to have mental retardation if
there is also serious impairment of adaptive behavior.
Definitions
and classifications shall be consistent with the "Manual of Terminology
Classification in Mental Retardation" by the American Association on
Mental Deficiency, 1977 Revision. Mental retardation is synonymous with mental
deficiency.
12. Is
this definition in statute? No
13. If
so, what is the citation?
Research
Assistant Notes: Mental Retardation in defined in ORS. Developlemental Disabilities is not.
Incidence
14. Does
your state have any of the following systems for collecting data?
Trauma
Registry Yes
TBI Registry
No
TBI
Surveillance system No
Other
(Indicate: Hospital Discharge Database) Yes
15. If
your state has a TBI registry, is it population based? NA
(i.e., does it
include information for all cases in the state, not just those from
selected hospitals or facilities? CDC-funded TBI surveillance is
population-based).
16. If
your state has a TBI registry, is it established in statute? NA
17. If
so what is the citation?
18. Is
reporting mandatory? NA
19. Is
the mandatory reporting enforced? NA
20.
Where (or to whom) is the data reported?
21. If
you have a TBI registry, does it include follow-up contact? NA
22. If
so, when are people contacted?
In Hospital NA
3 months post
injury NA
6 months post
injury NA
12 months post
injury NA
23. What
information do you obtain or provide in the follow-up contact?
24. CDC
recommends the following codes for surveillance using ICD-coded data systems:
800.0-801.9 Fracture
of the vault or base of the skull
803.0-804.9 Other
and unqualified and multiple fractures of the skull
850.0-854.1 Intracranial
injury, including concussion, contusion, laceration and hemorrhage
959.01 Head injury,
unspecified (as of
Does your
state capture any others?
No
25. If
so, what are they?
Research
Assistant Notes:
General Revenue Funding
26. Does
your state allocate general revenue funds for TBI-specific programs and
services? No (If no, skip to Question
33)
27. If
so, what year did allocations begin?
28. If
so, how much was allocated, and to which agencies, in the most recent fiscal
year for which data is available?
Year:
Planning/Policy
$ Agencies:
Prevention
$ Agencies:
Registry $ Agencies:
Research $ Agencies:
Services
(direct, purchase) $ Agencies:
Other (specify ) $ Agencies:
TOTAL $
29. What
are the eligibility criteria for persons receiving services from general
revenue sources?
Diagnosis
Age
Assets/Income
Years post
injury
Other (specify: )
30. How
many persons were served?
Year:
Information/Referral #
Service
Coordination/Case Management #
Services (therapies, day programs, etc.) #
Other (specify ) #
TOTAL #
31. Has
your state used tobacco settlements for TBI-specific programs and services?
Yes No
32. If
so, please list the programs and services:
Research
Assistant Notes:
Trust Fund Funding
33. Does
your state have a trust fund? No (If
no, skip to Question 42)
34. What
agency administers the fund?
35. Is the fund TBI or TBI plus (i.e., another disability such
as spinal cord injury)? TBI TBI+
36. When
was it created?
37. How
is it funded?
38. What
is the statute citation?
39. How
much revenue does the trust fund generate annually? $
40. How
much was allocated in the most recent fiscal year for which data is available?
Year:
Planning/Policy
$
Prevention
$
Registry $
Research $
Services
(direct, purchase) $
Other (specify ) $
TOTAL $
41. What
are the eligibility criteria for persons receiving services from general
revenue sources?
Diagnosis
Age
Assets/Income
Years post
injury
Other (specify: )
42. How
many persons were served?
Year:
Information/Referral #
Service
Coordination/Case Management #
Services (therapies, day programs, etc.) #
Other (specify ) #
TOTAL #
Research
Assistant Notes: Senate Bill 904 to establish a Brain Injury Trust Fund
was introduced during the 2001 Regular Session of the Oregon Legislative
Assembly. The bill did not make it to the floor of the Senate,
however. No state funding source was proposed except for $1 to legally
establish fund. Trust fund would have provided an opportunity to raise monies
from other sources. Patterned after spinal cord injury trust
fund.
Medicaid Waiver Funding
43. Does
your state have a Medicaid Waiver specific to
TBI? No (If no, skip to Q. 45)
44. When
was the TBI Waiver implemented?
45. How
many people were served in the most recent fiscal year? Year:
# Served:
46. Does
your state have other waivers that serve individuals with TBI?
Yes
47. What
type of waiver it is? (aging and disabled; DD,
other) List All: Aging & Disabled
48. How
many people with TBI are served under each type? Information
not available at this time. TBI is often considered to be a
"cause" versus a diagnosis.
Research
Assistant Notes:
Other Funding Streams
49. Does
your state have another source (i.e., no fault insurance) that funds TBI
programs and services? Yes No (If no,
skip to Question )
50. What
agency administers the alternate funding source?
51. When
was the alternate funding source created?
52. If
in statute, what is the citation?
53. How
is it funded?
54. How
much revenue does the alternate source generate annually? $
55. How
much was allocated in the most recent fiscal year for which data is available?
Year:
Planning/Policy
$
Prevention
$
Registry $
Research $
Services
(direct, purchase) $
Other (specify ) $
TOTAL $
56. What
are the eligibility criteria for persons receiving services from general
revenue sources?
Diagnosis
Age
Assets/Income
Years post
injury
Other (specify: )
57. How
many persons were served?
Year:
Information/Referral #
Service
Coordination/Case Management #
Services (therapies, day programs, etc.) #
Other (specify ) #
TOTAL #
Research
Assistant Notes:
Services & Supports
58.
States make a variety of services and supports available to individuals with
brain injury and their families. For each item, please indicate what your
state calls that service/support, when in the in the recovery process the
service is available (medical/acute or social/community integration or both)
and the funding source(s).
|
Services
& Supports |
Med |
Soc |
State Med Plan |
TBI Waiver |
Other Waiver |
Trust Fund |
Gen Rev |
Other (Specify) |
|
Assessment/Evaluation |
X |
X |
X |
|
X |
|
|
Aging
and Disabled |
|
Assisted Living |
|
X |
|
|
X |
|
|
|
|
Assistive
Technology Devices |
X |
X |
X |
|
X |
|
|
|
|
Behavioral
Programs/ Services |
X |
|
X |
|
|
|
|
|
|
Case
Management/Service Coordination |
|
X |
|
|
X |
|
|
|
|
Community &
Family Education |
|
X |
|
|
|
|
|
Not
specific to TBI, Older Americans Act |
|
Companion/
Homemaker Services |
|
X |
|
|
X |
|
|
|
|
Comprehensive
facility-based rehabilitation – Acute |
X |
|
X |
|
|
|
|
|
|
Comprehensive
facility-based rehabilitation – Post Acute |
X |
|
X |
|
|
|
|
|
|
Day Services –
Medical Model |
X |
X |
X |
|
X |
|
|
|
|
Day Services –
Social Model |
|
X |
|
|
X |
|
|
|
|
Environmental
Modifications |
|
X |
|
|
X |
|
|
|
|
Facility-based
sub-acute Care |
X |
X |
X |
|
X |
|
|
|
|
Housing
Supplements/ Subsidies |
|
|
|
|
|
|
|
|
|
Independent
Living Skills Training |
|
X |
|
|
|
|
X |
Federal
Independent Living Funds through VR |
|
In-home Nursing |
X |
|
X |
|
|
|
|
|
|
Long-term
Residential Services |
|
X |
|
|
X |
|
|
|
|
Personal Care
Assistants |
X |
|
X |
|
|
|
|
|
|
Personal
Emergency Response System |
X |
|
X |
|
|
|
|
|
|
Pre-Vocational
Services |
X |
|
|
X |
|
|
|
VR |
|
Recreation |
|
|
|
|
|
|
|
|
|
Respite Services |
|
X |
|
|
X |
|
|
|
|
Specialized
Medical Equipment and Supplies |
X |
|
X |
|
|
|
|
|
|
Support Groups |
|
X |
|
|
|
|
|
OAA |
|
Supported
Employment |
|
X |
|
|
X |
|
|
DD
& VR |
|
Substance Abuse
Services |
X |
|
X |
|
|
|
|
|
|
Individual
Therapy – Alternative |
X |
|
X |
|
|
|
|
|
|
Individual
Therapy – Cognitive |
X |
|
X |
|
|
|
|
|
|
Individual
Therapy – Occupational |
X |
|
X |
|
|
|
|
|
|
Individual
Therapy – Physical |
X |
|
X |
|
|
|
|
|
|
Individual
Therapy – Speech Hearing and Language |
X |
|
X |
|
|
|
|
|
|
Transportation |
X |
X |
X |
|
X |
|
|
|
|
Vehicle
Modifications |
|
X |
|
|
|
|
|
VR |
|
Vocational
Services |
|
X |
|
|
|
|
|
VR |
|
Other (Specify: ) |
|
|
|
|
|
|
|
|
|
Other (Specify: ) |
|
|
|
|
|
|
|
|
|
Other (Specify: ) |
|
|
|
|
|
|
|
|
Research Assistant Notes:
Demographics of Service
Population
59. Does
your state have demographic information on those you serve? If so, please
indicate:
|
Of
total persons with brain injury whom your state serves: |
Med State Plan |
TBI Waiver |
Other Waiver |
Trust Fund |
Gen Rev |
TOTAL |
|
What number is
male? |
|
|
|
|
|
|
|
What number is
female? |
|
|
|
|
|
|
|
What percent are
males? |
|
|
|
|
|
|
|
What percent are
female? |
|
|
|
|
|
|
|
What percent is
Caucasian? |
|
|
|
|
|
|
|
What percent is
African American? |
|
|
|
|
|
|
|
What percent is
Native American? |
|
|
|
|
|
|
|
What percent is
Hispanic? |
|
|
|
|
|
|
|
What percent is
other? |
|
|
|
|
|
|
|
What is the
average age of individuals served? |
|
|
|
|
|
|
|
What is the
average number of years post injury? |
|
|
|
|
|
|
Research
Assistant Notes: Information is not available.
Service Provider Questions
60.
Which of these methods does your state use to provide services to customers?
State provides directly
State purchases services
X State does both
61. If
your state purchases services, please indicate how many providers you work
with. Data not available
62. Has
your state developed performance-based measures tied to
funding? No
63. Has
your state adopted certification for para-professionals
(i.e., PCAs and other direct care
providers)? No
Research
Assistant Notes: State constitution amended to create a home care
commission one of whose responsibilities is to establish standards for home
care workers. Reference ORS 410.600.
Interagency Collaboration
64.
Which of the following agencies does the lead agency collaborate with? On what
initiatives (i.e., data sharing, funding, service coordination, training,
etc.)?
YES Alcohol and Substance/Drug Abuse
YES Developmental Disabilities (non-waiver
services) planning and development work to build state
infrastructure through MCH TBI State Demonstration Program and Governor's TBI
Task Force
NO Economic Development/Labor
(workforce development)
YES Injury/Disability Prevention planning and
development work to build state infrastructure through MCH TBI State
Demonstration Program and Governor's TBI Task Force
NO Insurance
YES Medical
Assistance/Medicaid planning and development work to build state
infrastructure through MCH TBI State Demonstration Program and Governor's TBI
Task Force
YES Protection &
Advocacy planning and development work to build state
infrastructure through MCH TBI State Demonstration Program and Governor's TBI
Task Force
NO Public Safety
YES Special Health Care Needs (not
EPSDT services, the old CCS services--MCHB block grant) planning
and development work to build state infrastructure through MCH TBI State
Demonstration Program and Governor's TBI Task Force
NO Social/Human Services (TANF,
income maintenance, etc.)
YES Special Education planning and
development work to build state infrastructure through MCH TBI State
Demonstration Program and Governor's TBI Task Force
NO Transportation
YES Vocational
Rehabilitation planning and development work to build state
infrastructure through MCH TBI State Demonstration Program and Governor's TBI
Task Force
YES Other (Specify: Health
Services) planning and development work to build state
infrastructure through MCH TBI State Demonstration Program and Governor's TBI
Task Force
YES Other (Specify: Senior
and Disabled Services) planning and development work to build state
infrastructure through MCH TBI State Demonstration Program and Governor's TBI
Task Force
YES Other (Specify: Mental
Health) planning and development work to build state infrastructure
through MCH TBI State Demonstration Program and Governor's TBI Task Force
65. Are
formal interagency agreements in place?
No
Research
Assistant Notes:
Advisory Council/Board
66. Does
your state have an advisory council/board for TBI?
Yes
67. Is
the council/board discreetly for TBI? Yes
68. If not,
what disability is the council/board combined with?
69. When
was your advisory council/board established? 1997 as part of the
State's MCH Planning Grant work
70. Was
the council/board established in statute?
No
71. Was the council/board
established by executive order?
No
72. What
is the reference/citation for council establishment? N/A
73.
Where is the council/board located within state government (ie
specific agency/agencies)? Department of Education
74. To
whom does the council report? (i.e., agency administrator, division director,
governor, legislature) Asst. Superintendent for Special Education
75. Is
staff assigned to the council? ?
Yes
76. How
many people serve on the council? 42
77. Which state agencies are represented on the council?
NO Alcohol and Substance/Drug Abuse
NO Children & Families
YES Developmental Disabilities
NO Economic Development/Labor
YES Injury/Disability Prevention
NO Insurance
YES Medical Assistance/Medicaid
NO Mental Health
YES Protection & Advocacy
NO Public Safety
YES Special Health Care Needs
YES Social/Human Services
YES Special Education
NO Transportation
YES Vocational Rehabilitation
YES Other (Specify:
Independent Living Centers)
YES Other (Specify: Health
Services)
YES Other (Specify: Senior
and Disabled Services)
78. What
is the council’s composition by percentage?
Agency Staff 21%
Consumers 17%
Family Members 21%
Other 64%
79. How
are council members appointed? individuals
are invited to serve on the Council and/or state agencies are asked to nominate
staff to participate
80. Is
there a chairperson of the council? ?
Yes
81. How
is he/she selected? Chair is
82. What
is the frequency of council meetings? meetings
are held as needed; information is also shared with Council members
electronically and individual Council members are contacted for support
depending on their areas of expertise. A smaller Executive Council
(approx 15) met more regularly from 1999-2001 during
83. What
participation supports are provided to council members with disabilities?
YES Accommodations (please specify: accessible
meeting facilities)
NO Compensation for time
NO Expense reimbursement
NO Personal care attendants
NO Pre-meeting coaching or
mentoring
NO Other (please specify: )
84. What
issues does the council address?
NO Prevention
NO Medical/Rehabilitation
NO Deinstitutionalization
NO Long-term services/supports
NO Systems coordination
NO Provider relations
NO Advocate relations
YES Other (please specify:
Council has served mainly to guide the HRSA work in our state and to do
planning needed for long-term sustainability of efforts.)
85. What
activities does the council engage in?
NO Advocacy
YES Collaboration
YES Education
NO Funding Decisions
NO Information/Referral
YES Planning
NO Other (please specify: )
86. What
products or reports have been produced by the council/board? What is the
frequency of the products/publications (i.e., annual, bi-annual, periodic as
needed) None, as a council.
87. Is
the council/board a vehicle for other public policy disability stakeholder
involvement (e.g., representation on task force on other disability policy
issues) Council includes representatives of the Oregon
Developmental Disabilities Council, the Oregon Disabilities Commission, the
Oregon State Independent Living Council. A member of the Council sat on
the Coalition of Oregon Disability Organizations (CODO) during its existence
(roughly 2000-2001); and currently serves on its successor, the Oregon Cross
Disability Coalition.
Research
Assistant Notes:
Other
88. How
does your state address TBI and children? Oregon Department of
Education, under contract with Teaching Research -- Eugene, training and
supports a state wide TBI Consulting Team to provide staff development and
on-site consultation support to educators working with students with TBI and
the families of these student.
89. How
does your state address aging with TBI?
90. Has
your state developed any promising practices (e.g.,
91. Has
your state enjoyed any significant legislative accomplishments in the past
year? If so, please describe: In April of 2001, Gov. Kitzhaber signed an executive order creating a Governor's
TBI Task Force charged with making recommendations to the Governor and the
state Legislature regarding: (1) a coordinated state agency r esponse to brain injury focused on the needs of persons
with brain injury; (2) sources of funding for a TBI Trust Fund to be used to
provide support and assistance to survivors; (3) costs/benefits of establishing
an Oregon TBI Registry/Surveillance Program; and (4) establishment of a Brain
Injury Advisory Council to advise the Governor and Legislative Asembly on needs of persons with brain injuries. The
Task Force is charged with proposing legislation to iomplement
Task Force recommendations.
92. What
trends are you seeing in TBI in your state?
93. Do
you have any additional comments?
Thank you for
completing this survey!